Bridging the Ethical Divide: Enhancing Patient Autonomy through Shared Decision-Making and Advance Care Planning in Advanced Nursing Practice

Authors

  • Yosep Andri Putra STIKES Bina Insani Sakti

DOI:

https://doi.org/10.61978/curatio.v2i3.1404

Keywords:

Patient Autonomy, Shared Decision-Making, Advance Care Planning, Nursing Ethics, APN, Healthcare Systems

Abstract

This study explores the barriers and ethical challenges faced by Advanced Practice Nurses (APNs) in implementing Shared Decision-Making (SDM) and Advance Care Planning (ACP). Although these practices are foundational to patient autonomy and endorsed by professional nursing codes, their application in clinical settings remains limited. This research examines the structural, cultural, and ethical factors that hinder or support SDM and ACP. A qualitative content analysis was conducted on structured datasets detailing clinical autonomy challenges and ethical responsibilities in nursing, using ethical codes from the American Nurses Association (ANA) and the International Council of Nurses (ICN) as guiding frameworks. The analysis identified three major areas of concern: institutional and cultural barriers, ethical conflicts (e.g., autonomy vs. beneficence, coercion), and operational deficiencies in documentation and workflow integration. Organizational constraints such as time pressure, lack of ACP documentation tools, and hierarchical cultures inhibit engagement, while cultural norms prioritizing family over individual autonomy and professional biases further restrict patient involvement. Ethical dilemmas commonly arise in high-acuity settings, and training deficits limit APN confidence in facilitating ethical conversations. The study concludes that effective SDM and ACP implementation requires systemic reforms, including embedded ethical frameworks, ethics education, and standardized documentation tools to promote patient-centered care.

References

Alodhialah, A. M., Almutairi, A. A., & Almutairi, M. (2024). Ethical and Legal Challenges in Caring for Older Adults With Multimorbidities: Best Practices for Nurses. Healthcare, 12(16), 1585. https://doi.org/10.3390/healthcare12161585 DOI: https://doi.org/10.3390/healthcare12161585

Briganti, G., & Moine, O. L. (2020). Artificial Intelligence in Medicine: Today and Tomorrow. Frontiers in Medicine, 7. https://doi.org/10.3389/fmed.2020.00027 DOI: https://doi.org/10.3389/fmed.2020.00027

Bulut, A., Şengül, H., Mumcu, Ç. İ., & Mumcu, B. (2024). Physician-Nurse Collaboration in the Relationship Between Professional Autonomy and Practice Behaviors. Nursing Ethics, 32(1), 253–271. https://doi.org/10.1177/09697330241252971 DOI: https://doi.org/10.1177/09697330241252971

Childress, J. F., & Childress, M. D. (2020). What Does the Evolution From Informed Consent to Shared Decision Making Teach Us About Authority in Health Care? The Ama Journal of Ethic, 22(5), E423-429. https://doi.org/10.1001/amajethics.2020.423 DOI: https://doi.org/10.1001/amajethics.2020.423

Dawar, S., Nayak, R., & R., R. J. (2023). Ethical Considerations in Critical Care Nursing and Their Impact on Professional Conduct in Intensive Care Units. Seminars in Medical Writing and Education, 2, 121. https://doi.org/10.56294/mw2023121 DOI: https://doi.org/10.56294/mw2023121

Detering, K., Buck, K., Ruseckaite, R., Kelly, H., Sellars, M., Sinclair, C., Clayton, J. M., & Nolte, L. (2019). Prevalence and Correlates of Advance Care Directives Among Older Australians Accessing Health and Residential Aged Care Services: Multicentre Audit Study. BMJ Open, 9(1), e025255. https://doi.org/10.1136/bmjopen-2018-025255 DOI: https://doi.org/10.1136/bmjopen-2018-025255

Dubey, Ms. S. D. (2024). Ethical and Professional Issues in Nursing. 19–26. https://doi.org/10.58532/v3bipn18p2ch2 DOI: https://doi.org/10.58532/V3BIPN18P2CH2

Esfandiari, M., Nazari, A. M., Zamani, F., & Gholampour, M. H. (2024). Ethical Dilemmas in Nurses Toward Deception in Medicine in Patients at the End-of-Life Stage: An Important Yet Challenging &Amp; Questionable Issue. JNRCP, 0(0), 0–0. https://doi.org/10.32598/jnrcp.23.103 DOI: https://doi.org/10.32598/JNRCP.23.103

Frank, C., Holmberg, M., Jernby, E. E., Hansen, A. S., & Bremer, A. (2022). Older Patients’ Autonomy When Cared for at Emergency Departments. Nursing Ethics, 29(5), 1266–1279. https://doi.org/10.1177/09697330221105637 DOI: https://doi.org/10.1177/09697330221105637

Gassas, R., Ahmed, M. E., & Asloob, M. (2024). Ethical Decision-Making Confidence and Professional Values Among Nurse Leaders. Jona the Journal of Nursing Administration, 54(6), 353–360. https://doi.org/10.1097/nna.0000000000001438 DOI: https://doi.org/10.1097/NNA.0000000000001438

Huang, C., Lam, L., Zhong, Y., Plummer, V., & Cross, W. (2020). Chinese Mental Health Professionals’ Perceptions of Shared Decision‐making Regarding People Diagnosed With Schizophrenia: A Qualitative Study. International Journal of Mental Health Nursing, 30(1), 189–199. https://doi.org/10.1111/inm.12771_1 DOI: https://doi.org/10.1111/inm.12771_1

Ibrahim, A. M. (2024). Nurses’ Ethical Responsibilities: Whistleblowing and Advocacy in Patient Safety. Nursing Ethics, 31(7), 1289–1314. https://doi.org/10.1177/09697330241235306 DOI: https://doi.org/10.1177/09697330241235306

Javed, H., Muqeet, H. A., Javed, T., Rehman, A. U., & Sadiq, R. (2024). Ethical Frameworks for Machine Learning in Sensitive Healthcare Applications. Ieee Access, 12, 16233–16254. https://doi.org/10.1109/access.2023.3340884 DOI: https://doi.org/10.1109/ACCESS.2023.3340884

Jia, Y. (2024). Ethical Dilemmas of Nurses on Patient Autonomy in End-of-Life Care in a Selected Tertiary Hospital in Nanyang City, China. International Journal of Social Science and Human Research, 7(08). https://doi.org/10.47191/ijsshr/v7-i08-24 DOI: https://doi.org/10.47191/ijsshr/v7-i08-24

Kata, A., Sudore, R. L., Finlayson, E., Broering, J. M., Ngo, S., & Tang, V. (2018). Increasing Advance Care Planning Using a Surgical Optimization Program for Older Adults. Journal of the American Geriatrics Society, 66(10), 2017–2021. https://doi.org/10.1111/jgs.15554 DOI: https://doi.org/10.1111/jgs.15554

Lim, A., & Kim, S. (2021). Nurses’ Ethical Decision-Making During End of Life Care in South Korea: A Cross-Sectional Descriptive Survey. BMC Medical Ethics, 22(1). https://doi.org/10.1186/s12910-021-00665-9 DOI: https://doi.org/10.1186/s12910-021-00665-9

Rosca, A., Karzig-Roduner, I., Kasper, J., Rogger, N., Drewniak, D., & Krones, T. (2023). Shared Decision Making and Advance Care Planning: A Systematic Literature Review and Novel Decision-Making Model. BMC Medical Ethics, 24(1). https://doi.org/10.1186/s12910-023-00944-7 DOI: https://doi.org/10.1186/s12910-023-00944-7

Sastre‐Fullana, P., Morales‐Asencio, J. M., Sesé, A., Bennasar‐Veny, M., Fernández‐Domínguez, J. C., & Pedro‐Gómez, J. E. d. (2017). Advanced Practice Nursing Competency Assessment Instrument (APNCAI): Clinimetric Validation. BMJ Open, 7(2), e013659. https://doi.org/10.1136/bmjopen-2016-013659 DOI: https://doi.org/10.1136/bmjopen-2016-013659

Sellars, M., Chung, O., Nolte, L., Tong, A., Pond, D., Fetherstonhaugh, D., McInerney, F., Sinclair, C., & Detering, K. (2018). Perspectives of People With Dementia and Carers on Advance Care Planning and End-of-Life Care: A Systematic Review and Thematic Synthesis of Qualitative Studies. Palliative Medicine, 33(3), 274–290. https://doi.org/10.1177/0269216318809571 DOI: https://doi.org/10.1177/0269216318809571

Shojaee, A., Hasanvand, F., Namazi, H. R., Parsa, M., & Rashidi, K. (2024). Nurses’ Professional Ethics Dimensions From the Point of View of Nurses and Physicians: A Qualitative Content Analysis. Iranian Journal of Medical Ethics and History of Medicine. https://doi.org/10.18502/ijme.v16i19.15955 DOI: https://doi.org/10.18502/ijme.v16i19.15955

Silva, D. K. M. De, Kaushalya, K. A. D. S., & Asurakkody, T. A. (2024). Ethical Problems and Application of Ethical Decision-Making Models in Nursing Practice: A Scoping Review. University of Colombo Review, 5(2), 136–150. https://doi.org/10.4038/ucr.v5i2.179 DOI: https://doi.org/10.4038/ucr.v5i2.179

Stephens, S. (2022). Qualitative Content Analysis: A Framework for the Substantive Review of Hospital Incident Reports. Journal of Healthcare Risk Management, 41(4), 17–26. https://doi.org/10.1002/jhrm.21498 DOI: https://doi.org/10.1002/jhrm.21498

Tarhan, M. (2024). The Relationship Between Attitudes Towards Professional Autonomy and Nurse–nurse Collaboration: A Cross‐sectional Study. International Nursing Review, 72(2). https://doi.org/10.1111/inr.13039 DOI: https://doi.org/10.1111/inr.13039

Yamamoto, K., Yonekura, Y., Hayama, J., Matsubara, T., Misumi, H., & Nakayama, K. (2021). Advance Care Planning for Intensive Care Patients During the Perioperative Period: A Qualitative Study. Sage Open Nursing, 7. https://doi.org/10.1177/23779608211038845 DOI: https://doi.org/10.1177/23779608211038845

Zhao, J., Xu, J., & He, Y. (2022). The Status Quo and Influencing Factors of the Moral Distress in Nurses in Tertiary Grade a Hospitals in Wuhan. Open Journal of Nursing, 12(07), 537–547. https://doi.org/10.4236/ojn.2022.127036 DOI: https://doi.org/10.4236/ojn.2022.127036

Downloads

Published

2025-07-31

How to Cite

Putra, Y. A. (2025). Bridging the Ethical Divide: Enhancing Patient Autonomy through Shared Decision-Making and Advance Care Planning in Advanced Nursing Practice. Curatio : Journal of Advanced and Specialized Nursing, and Care Planning, 2(3), 162–171. https://doi.org/10.61978/curatio.v2i3.1404

Issue

Section

Articles